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Posts Tagged ‘fatigue’

My body is angry. I ache everywhere. I feel like I physically, from the neck down, have the ‘flu. My ankles are “clicking” more than usual. Same with my wrists. I was walking the other day and my ankle seized up. It simply stopped working and hurt a lot.

I stopped walking, rotated my ankle and was eventually able to weight bear. It scared me. I carefully walked back to my car, got home, elevated, medicated, applied heat and cold alternately and eventually dozed off.

I realised for the past two months I’ve been clenching everything. My jaw, my hands, my body and it’s unsustainable. We are living in a world most of us have never seen before. It’s scary. It’s frustrating. It’s unbelievable. And yet, it is our reality.

When I am at my best I eat three healthy meals a day. I cook at home, I drink lots of water, some decaffeinated tea, a little diet pop, and eat treats sparingly. I can get 8 hours of sleep and awaken feeling refreshed. I have few food cravings. My eyes are clear, my skin is dewy and I feel good.

Not these days, though.

My skin is sallow. I look haggard. I can’t sleep more than a couple of hours at a time. I wake before my alarm and when I decide to try and sleep more, I fall into a deep sleep and have difficulty rousing to my alarm.

I am craving foods I’ve not craved in months, if not years. I’m drinking mostly tea, lots of diet pop and a moderate amount of water. My skin is alternately dry and oily. Everything hurts. Well, except my hair. It’s just growing…fast…and a lot.

My food addiction is bad. I have so much shame about food that I feel humiliated. I am eating 1 – 2 meals a day. I start off with the best of intentions, then end up feeling ravenous, even though I KNOW I’m not hungry. I buy healthy food. Fruit, vegetables, lean meat, multi-grain bread. I don’t bring home a lot of processed food. And yet I crave chips and cookies. And I can’t eat one serving. I eat the whole bag.

I’m aware I’m doing it and I get angry and ashamed. Yet I can’t stop.

I’m currently using two online apps. One is through a wearable device which I really like because it gives advice on what to do as far as exercise in isolation. It’s adapted to the current reality of the world. The other is an online subscription app. I used it a few years ago and it was working well for me, then I stopped. I can’t remember why, but I know it was because I got frustrated with being moved from peer group to peer group.

The program has changed a little in a few years. And not at all since the pandemic. All the “helpful hints” involve getting together with family and friends, of going shopping with your girlfriends. Of going out to dinner, etc. NONE of which we can do right now. So, being the quiet and demure female I am… (you know, there REALLY needs to be a sarcasm font) I sent a message to my personal coach and the Concierge and didn’t receive a satisfactory answer.

I’ve asked questions about dealing with food addiction and been told “in their opinion” that such things don’t exist. Um, what?

I’m debating quitting the online program when my “course” is finished (August). I’m not losing weight, although I am following the course given the restrictions of COVID-19. Ugh.

I was listening to a podcast earlier today and there was woman who was raised by a crack-addicted mother. She was quite judmental with her mother for not having enough self-control. Until she found herself in her mid-twenties eating her feelings…until she weighed over 400 lbs and knew her life was in jeopardy. She joined Overeaters Anonymous and it helped her.

Food addiction is real. It is as valid an addiction as any other. Because I’m in a heightened place of stress, my coping mechanisms are weak…in some cases non-existent. My impulse control seems to be broken.

So, I’ve decided to check out Overeaters Anonymous. There are virtual meetings that I can drop into and drop out of. I think it would help me to talk to people who understand how I feel. Who understand the minefield that food addiction and grocery shopping can be.

Hopefully I can learn, again, to lessen my stress and eat properly so my body will stop being angry with me.

Oh! And then there’s the physical changes with menopause and HRT (Hormone Replacement Therapy). I’ll get there. I know I will.

It will take time. It will take effort. And it will take help. Help which I am determined to get.

Watch this space…

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I have Chronic Fatigue Syndrome.  It is not who I am .  It does not define me.  And yet there are days when I really feel it.  Since moving west I’ve moved my body more than ever and I’m loving how my body is responding.  My skin is glowing, I’m drinking lots of water, eating fresh foods wherever possible, getting outside into the sun or rain and walking most everywhere.

When I first got here I was absolutely exhausted.  The Archbishop asked if my soul had caught up with my body from all the traveling, and when I stopped to ponder his words I realised that it had not.  And that was sad.  So I rested myself more than usual, took things slower and generally listened to my body.

One of the challenges with CFS is chronic pain.  It’s manageable…I’ve lived with it for 18 years.  Most days, once I get moving, it’s barely noticeable and so, I’ll admit, I get a bit cocky…and then that’s when my old friend returns.

Late nights, early morning, poor nutrition choices, overloaded work schedule, stress, etc. etc. etc. and soon the dance of fatigue becomes more complicated.

Last night was one of those nights.  I found my body getting heavy.  I found my ability to concentrate diminished. I fought to stay alert and when I started to lose my horizon I lay down.  It took me a little while to figure out which way was down, but once I did, gravity did the rest.  I slept deeply, heavily for a couple of hours.  Woke up refreshed and needing the bathroom.  Returned to bed and slept deeply again…glorious, restful sleep.

So today as I look at my schedule for the week, I’m going to be a bit more gentle with myself.  I’m still going to walk, but not push myself…life is a marathon, not a sprint.  I’m going to eat food I enjoy, and savour it.  I’m going to begin to journal again, noting the joy and challenge in my life.  And I’m going to live.

Slowly, I’m learning to reframe my language into something that is positive.  A wise friend recently commented that language and words define our power…define our reality.  And it’s so true.  “Sticks and stones will break my bones, but names will never hurt me” is a fallacy and a damaging one at that.

My biggest critic is the negative self-talk that permeates my being.  Instead of building walls to keep people out, I’m going to build walls to surround the negative self-talk.  I will acknowledge it, dismiss it, and move on with my life.

A challenge?  Most definitely.

Do-able?  Absolutely.

Because I choose to be happy.  The only actions I control are my own.  And so I will choose to come from a place of love — always.  I will choose to come from a place of peace, of hope and of joy.

Oh there will be bad days…but they will not define me.  Like my CFS does not define me.  Right now we’re dancing the CFS is leading, but not for long.  And when that dance concludes, I’ll send him home.  Then I’ll continue to dance the dance of unbridled joy…perhaps even dancing in the rain.

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